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Hoping Against Hope: Ethical Considerations when Trying Unproven Treatments for Seriously Ill Children

Authors
 Ji Hyun Yang  ;  Yumi Son  ;  Ilhak Lee 
Citation
 ASIAN BIOETHICS REVIEW, Vol.17(2) : 279-291, 2025-02 
Journal Title
ASIAN BIOETHICS REVIEW
ISSN
 1793-8759 
Issue Date
2025-02
Keywords
Compassionate use ; Complementary and alternative medicine ; Off-label use ; Paediatrics ; Parental rights ; Surrogate decision-making
Abstract
Modern medicine is continually evolving, yet developing and validating new treatments for paediatric patients presents significant challenges. Ethical dilemmas often arise when parents consider nonstandard treatments for their children, driven by desperation and the hope of finding effective interventions. Therefore, there is an urgent need for robust ethical frameworks to guide thier decision-making processes. Such frameworks must include the necessity for informed consent, ensuring that parents understand the potential risks and benefits of unproven treatments. Additionally, clear and open communication between parents and healthcare providers throughout the treatment journey is crucial. This ensures that decisions are made in the best interest of paediatric patients, considering their unique needs and vulnerabilities. By addressing the ethical considerations of trying unproven treatment for seriously ill children, healthcare professionals can better navigate these complexities, and ultimately foster a more compassionate and ethically sound healthcare environment.
Full Text
https://link.springer.com/article/10.1007/s41649-024-00340-2
DOI
10.1007/s41649-024-00340-2
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Medical Humanities and Social Sciences (인문사회의학교실) > 1. Journal Papers
Yonsei Authors
Lee, Il Hak(이일학) ORCID logo https://orcid.org/0000-0002-6531-8752
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/205309
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