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정밀의료에서의 개인정보와 정책방향에 관한 연구 : 미국, EU, 일본과의 비교법제도 분석을 중심으로

Other Titles
 A Study on Personal Information Issues and Policy Direction toward Precision Medicine 
Authors
 장세균  ;  김현창  ;  김소윤 
Citation
 Korean Journal of Medicine and Law (한국의료법학회지), Vol.25(1) : 133-154, 2017 
Journal Title
 Korean Journal of Medicine and Law (한국의료법학회지) 
ISSN
 1598-9178 
Issue Date
2017
Keywords
Precision Medicine ; Genomic Research ; Personalized Medicine ; Right to Privacy ; Personal Information Protection Act ; Genetic discrimination
Abstract
This article aims to analyze the issues that may arise from the handling of personal information in precision medicine research and to suggest policy directions for precision medicine in Korea. To do this, we reviewed the key features of precision medicine research and characteristics (cohort, collected information, based technology, etc.) compared with existing medical researches and highlighted the value of personal information in precision medicine. In addition, we examined privacy issues such as invasion of privacy, conflicts with current privacy laws, and prohibition of genetic discrimination in foreign medical legislation. The results of this study are as follows. First, the legal basis for using personal information was needed in the precision medical research and the revision of the personal information protection law or the special medical law were required. In addition, we considered that it is necessary to prepare more specific regulations when considering the development of analysis technology of genetic information, which is the core information in precision medical research and the damage caused by leakage of information. Through this article, we intended to contribute to the establishment of the policy direction and the promotion of researches for precision medicine in Korea.
URI
http://ir.ymlib.yonsei.ac.kr/handle/22282913/161197
DOI
10.17215/kaml.2017.06.25.1.133
Appears in Collections:
1. Journal Papers (연구논문) > 1. College of Medicine (의과대학) > Dept. of Medical Law and Bioethics (의료법윤리학과)
1. Journal Papers (연구논문) > 1. College of Medicine (의과대학) > Dept. of Preventive Medicine and Public Health (예방의학교실)
Yonsei Authors
김소윤(Kim, So Yoon) ; 김현창(Kim, Hyeon Chang)
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Full Text
http://www.dbpia.co.kr/Journal/ArticleDetail/NODE07222091
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