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유전체 맞춤의학 연구와 위험의 개념 이해

Other Titles
 The Concept of Risk in the era of Personalized Genetic Medicine 
Authors
 이일학  ;  김성혜  ;  유승협  ;  김소윤 
Citation
 Bioethics Policy Studies (생명윤리정책연구), Vol.6(2) : 23-40, 2012 
Journal Title
Bioethics Policy Studies(생명윤리정책연구)
ISSN
 1976-3719 
Issue Date
2012
Keywords
유전체 맞춤의학 ; 윤리적 규율 ; 위험 ; ELSI ; personalized genomic medicine ; ethical framework ; risk
Abstract
Personalized genetic medicine(PGM) is an attempt to understand the relationship between human genetic information and diseases, and to find a potential treatment and diagnostic method. Large research projects are under way with social concerns. ELSI research is aimed at understanding the implication of an innovative research from humanistic perspectives, and communicating the understanding with society and with scientists, thereby providing practical and concrete recommendations and guides. Of the ELSI studies, ethics of PGM research searches the value problems embedded in various perspectives on PGM and tries to answer the question whether it is permissible to implement certain types of research. A framework for ethical analysis is proposed and explained. The concept of risk in general was explored and its implication for ethical review of PGM in relation with the natures of PGM was given. The risks can be categorized: risks associated with the inherent characteristics of research/practice, risks associated with human eras and risks related social construction and (in)justice. Understanding the nature of risk will help the IRB’s reviewing the PGM researches.
Full Text
http://www.dbpia.co.kr/Article/3265381
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Medical Humanities and Social Sciences (인문사회의학교실) > 1. Journal Papers
Yonsei Authors
Kim, So Yoon(김소윤) ORCID logo https://orcid.org/0000-0001-7015-357X
Lee, Il Hak(이일학) ORCID logo https://orcid.org/0000-0002-6531-8752
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/92429
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