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Genetic discrimination: introducing the Asian perspective to the debate

Authors
 Hannah Kim  ;  Calvin W L Ho  ;  Chih-Hsing Ho  ;  P S Athira  ;  Kazuto Kato  ;  Leonardo De Castro  ;  Hui Kang  ;  Richard Huxtable  ;  Hub Zwart  ;  Jonathan Ives  ;  Ilhak Lee  ;  Yann Joly  ;  So Yoon Kim 
Citation
 NPJ GENOMIC MEDICINE, Vol.6(1) : 54, 2021-07 
Journal Title
NPJ GENOMIC MEDICINE
Issue Date
2021-07
Abstract
Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.
Files in This Item:
T202125608.pdf Download
DOI
10.1038/s41525-021-00218-4
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Medical Humanities and Social Sciences (인문사회의학교실) > 1. Journal Papers
Yonsei Authors
Kim, So Yoon(김소윤) ORCID logo https://orcid.org/0000-0001-7015-357X
Kim, Han Nah(김한나)
Lee, Il Hak(이일학) ORCID logo https://orcid.org/0000-0002-6531-8752
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/188139
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