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Burden of migraine and unmet needs from the patients' perspective: a survey across 11 specialized headache clinics in Korea

Authors
 Byung-Kun Kim  ;  Min Kyung Chu  ;  Soo Jin Yu  ;  Grazia Dell'Agnello  ;  Jeong Hee Han  ;  Soo-Jin Cho 
Citation
 JOURNAL OF HEADACHE AND PAIN, Vol.22(1) : 45, 2021-05 
Journal Title
JOURNAL OF HEADACHE AND PAIN
ISSN
 1129-2369 
Issue Date
2021-05
MeSH
Adolescent ; Adult ; Aged ; Disability Evaluation ; Headache ; Humans ; Middle Aged ; Migraine Disorders* / diagnosis ; Migraine Disorders* / epidemiology ; Migraine Disorders* / therapy ; Quality of Life* ; Republic of Korea / epidemiology ; Surveys and Questionnaires ; Young Adult
Keywords
Burden ; Diagnosis ; Disability ; Korea ; MIDAS ; MSQv2.1 ; Migraine ; Patient survey ; Treatment
Abstract
Background: Migraine is a neurological, primary headache disorder affecting more than 1 billion people worldwide, with a multi-faceted burden that can significantly impact the everyday life of a patient, both during and between attacks. However, studies on patient awareness, burden, and clinical management of migraine in Korea are limited and outdated. The aim of this study was to comprehensively investigate the current difficulties and unmet needs that Korean patients with migraine encounter from their perspective.

Methods: A total of 207 patients with episodic or chronic migraine aged between 15 and 76 years, completed a survey designed to cover the following topics: diagnosis, understanding of the disease, treatment experience, disability, and quality of life. Patients were recruited by their neurologists from 11 specialized headache clinics in Korea and completed the survey between 22 July and 19 August 2019. Validated scales such as the Migraine Disability Assessment (MIDAS) questionnaire and Migraine-Specific Quality of Life Questionnaire version 2.1 (MSQv2.1) were used to assess levels of disability and quality of life, respectively, in patients.

Results: On average, it took 10.1 years from onset of symptoms to diagnosis and a mean of 3.9 hospitals were visited for treatment prior to the patient's current hospital. There was a lack of understanding among respondents about migraine, with 55.6% believing that unilateral headache is a unique feature of migraine compared with other headache disorders. On average, high levels of disability and poor quality of life were reported by patients, as assessed by MIDAS and MSQv2.1, respectively, but only 23.7% had regularly taken preventive medication in the past. Overall satisfaction with previous doctor-patient relationships was reported by 29.5% of respondents, and satisfaction with preventive and acute medications by only 40.8% and 27.1% of the respondents, respectively.

Conclusion: Korean patients with migraine experience significant disability and reduced quality of life as a result of the disease and have clear unmet needs in terms of diagnosis, understanding of the disease, and disease management including treatment.
Files in This Item:
T202101887.pdf Download
DOI
10.1186/s10194-021-01250-6
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Neurology (신경과학교실) > 1. Journal Papers
Yonsei Authors
Chu, Min Kyung(주민경) ORCID logo https://orcid.org/0000-0001-6221-1346
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/184019
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