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Lived experiences of adult patients with moyamoya disease: A qualitative case study

Authors
 Gi Wook Ryu  ;  Yong Sook Yang  ;  Mona Choi  ;  Kyu Won Shim 
Citation
 JAPAN JOURNAL OF NURSING SCIENCE, Vol.17(3) : e12332, 2020-07 
Journal Title
 JAPAN JOURNAL OF NURSING SCIENCE 
ISSN
 1742-7932 
Issue Date
2020-07
MeSH
Adaptation, Psychological ; Adult ; Anxiety ; Family ; Female ; Humans ; Male ; Middle Aged ; Moyamoya Disease / physiopathology* ; Moyamoya Disease / psychology ; Qualitative Research
Keywords
adaptation ; adult ; life change events ; moyamoya disease ; qualitative research
Abstract
Aim: To understand the daily lived experiences of adult moyamoya disease patients. Methods: This qualitative study involved a purposive sample of 14 adult moyamoya disease patients diagnosed after 19 years or older at one university hospital in Seoul. Interviews conducted with patients included open-ended questions about the experience of living with moyamoya disease. The data were analyzed using Colaizzi's seven-step method, which derives the theme. Results: Participants' experiences were divided into three themes and eight sub-themes. "Having an unexpected disease that suddenly struck my life" refers to confusion and depression due to the diagnosis of the unexpected illness; "being occasionally anxious about the illness" describes patients' uncertainty about the disease and worrying about passing the disease on to their child; and "living with the disease by going through the disease experience" refers to the process of accepting and adapting to the illness. Conclusions: The findings provide a better understanding of the life changes and lived experiences of adult patients with moyamoya disease. Nurses should consider various aspects when providing care to adult moyamoya disease patients.
Full Text
https://onlinelibrary.wiley.com/doi/full/10.1111/jjns.12332
DOI
10.1111/jjns.12332
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Neurosurgery (신경외과학교실) > 1. Journal Papers
3. College of Nursing (간호대학) > Dept. of Nursing (간호학과) > 1. Journal Papers
Yonsei Authors
Shim, Kyu Won(심규원) ORCID logo https://orcid.org/0000-0002-9441-7354
Choi, Mona(최모나) ORCID logo https://orcid.org/0000-0003-4694-0359
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/179942
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