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Lived experiences of adult patients with moyamoya disease: A qualitative case study
DC Field | Value | Language |
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dc.contributor.author | 심규원 | - |
dc.contributor.author | 최모나 | - |
dc.date.accessioned | 2020-12-01T16:43:07Z | - |
dc.date.available | 2020-12-01T16:43:07Z | - |
dc.date.issued | 2020-07 | - |
dc.identifier.issn | 1742-7932 | - |
dc.identifier.uri | https://ir.ymlib.yonsei.ac.kr/handle/22282913/179942 | - |
dc.description.abstract | Aim: To understand the daily lived experiences of adult moyamoya disease patients. Methods: This qualitative study involved a purposive sample of 14 adult moyamoya disease patients diagnosed after 19 years or older at one university hospital in Seoul. Interviews conducted with patients included open-ended questions about the experience of living with moyamoya disease. The data were analyzed using Colaizzi's seven-step method, which derives the theme. Results: Participants' experiences were divided into three themes and eight sub-themes. "Having an unexpected disease that suddenly struck my life" refers to confusion and depression due to the diagnosis of the unexpected illness; "being occasionally anxious about the illness" describes patients' uncertainty about the disease and worrying about passing the disease on to their child; and "living with the disease by going through the disease experience" refers to the process of accepting and adapting to the illness. Conclusions: The findings provide a better understanding of the life changes and lived experiences of adult patients with moyamoya disease. Nurses should consider various aspects when providing care to adult moyamoya disease patients. | - |
dc.description.statementOfResponsibility | restriction | - |
dc.language | English | - |
dc.publisher | Wiley on behalf of the Japan Academy of Nursing Science | - |
dc.relation.isPartOf | JAPAN JOURNAL OF NURSING SCIENCE | - |
dc.rights | CC BY-NC-ND 2.0 KR | - |
dc.subject.MESH | Adaptation, Psychological | - |
dc.subject.MESH | Adult | - |
dc.subject.MESH | Anxiety | - |
dc.subject.MESH | Family | - |
dc.subject.MESH | Female | - |
dc.subject.MESH | Humans | - |
dc.subject.MESH | Male | - |
dc.subject.MESH | Middle Aged | - |
dc.subject.MESH | Moyamoya Disease / physiopathology* | - |
dc.subject.MESH | Moyamoya Disease / psychology | - |
dc.subject.MESH | Qualitative Research | - |
dc.title | Lived experiences of adult patients with moyamoya disease: A qualitative case study | - |
dc.type | Article | - |
dc.contributor.college | College of Medicine (의과대학) | - |
dc.contributor.department | Dept. of Neurosurgery (신경외과학교실) | - |
dc.contributor.googleauthor | Gi Wook Ryu | - |
dc.contributor.googleauthor | Yong Sook Yang | - |
dc.contributor.googleauthor | Mona Choi | - |
dc.contributor.googleauthor | Kyu Won Shim | - |
dc.identifier.doi | 10.1111/jjns.12332 | - |
dc.contributor.localId | A02187 | - |
dc.contributor.localId | A04054 | - |
dc.relation.journalcode | J01204 | - |
dc.identifier.eissn | 1742-7924 | - |
dc.identifier.pmid | 32153137 | - |
dc.identifier.url | https://onlinelibrary.wiley.com/doi/full/10.1111/jjns.12332 | - |
dc.subject.keyword | adaptation | - |
dc.subject.keyword | adult | - |
dc.subject.keyword | life change events | - |
dc.subject.keyword | moyamoya disease | - |
dc.subject.keyword | qualitative research | - |
dc.contributor.alternativeName | Shim, Kyu Won | - |
dc.contributor.affiliatedAuthor | 심규원 | - |
dc.contributor.affiliatedAuthor | 최모나 | - |
dc.citation.volume | 17 | - |
dc.citation.number | 3 | - |
dc.citation.startPage | e12332 | - |
dc.identifier.bibliographicCitation | JAPAN JOURNAL OF NURSING SCIENCE, Vol.17(3) : e12332, 2020-07 | - |
dc.identifier.rimsid | 67132 | - |
dc.type.rims | ART | - |
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