우리나라 인체유래물은행의 유전체 정보 보호 현황과 제언- 2015년 포스트게놈 다부처 유전체 ELSI 사업의 현장실태조사결과를 중심으로 -

Abstract

This study on human material banks was conducted by the 2015 Center for Ethical, Legal and Social Implications. As part of a field study, we visited human material banks and researchers and conducted research using a semi-structured questionnaire. It is focused on privacy protection, such as collection of human material, informed consent, security, training, and international data sharing. The results showed each human material bank is managed according to its own guidelines. However, the study also revealed a need to improve the training system focused on human material banks, managing system after distribution, and working system for main employee.