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한국의 인간 유전체 연구에 있어 개인 프라이버시권과 국제데이터공유원칙 적용의 문제점

Other Titles
 Problems on Applying Right to Privacy and International Data Sharing Principles to Human Genomic Research in South Korea 
 김한나  ;  정창록  ;  김소윤 
 Korean Journal of Medicine and Law (한국의료법학회지), Vol.23(1) : 115-134, 2015 
Journal Title
Korean Journal of Medicine and Law(한국의료법학회지)
Issue Date
Genomic Research ; Right to Privacy ; International Principle of Genomic Data Sharing ; Bioethics and Safety Act ; Personal Information Protection Act1)
This article aims to demonstrate and harmonize the conflicting issues of individual’s right to privacy protected by current laws in Korea and application of the principle of sharing that is commonly accepted principle in international human genomic consortium. The article organizes characteristics of human genomics focusing on the development of genome sequencing technology, as well as biobanks and the genomic data sharing in the international cooperation. Current laws in Korea that are applicable to human genome research are mainly ‘Bioethics and Safety Act’ that discuss the legal and ethical principles on human research, and ‘Personal Information Protection Act’ that provides the basis of protective policy on personal information. Then, this article further demonstrates the conflicts between international research ethics and the laws in Korea. Also, we have organized these issues in regard to research review process, consent, sample/data collection, sample donation, sample/data transfer, and discarding and withdrawal sample/data. Through these processes, we seek how to harmonize the right to privacy and the principle of data sharing in human genomics.
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Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Medical Humanities and Social Sciences (인문사회의학교실) > 1. Journal Papers
Yonsei Authors
Kim, So Yoon(김소윤) ORCID logo https://orcid.org/0000-0001-7015-357X
Kim, Han Nah(김한나)
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