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Dynamic Consent: An Evaluation and Reporting Framework

DC Field Value Language
dc.contributor.author김한나-
dc.date.accessioned2022-09-02T01:11:58Z-
dc.date.available2022-09-02T01:11:58Z-
dc.date.issued2020-07-
dc.identifier.urihttps://ir.ymlib.yonsei.ac.kr/handle/22282913/190046-
dc.description.abstractDynamic consent (DC) is an approach to consent that enables people, through an interactive digital interface, to make granular decisions about their ongoing participation. This approach has been explored within biomedical research, in fields such as biobanking and genomics, where ongoing contact is required with participants. It is posited that DC can enhance decisional autonomy and improve researcher-participant communication. Currently, there is a lack of evidence about the measurable effects of DC-based tools. This article outlines a framework for DC evaluation and reporting. The article draws upon the evidence for enhanced modes of informed consent for research as the basis for a logic model. It outlines how future evaluations of DC should be designed to maximize their quality, replicability, and relevance based on this framework. Finally, the article considers best-practice for reporting studies that assess DC, to enable future research and implementation to build upon the emerging evidence base.-
dc.description.statementOfResponsibilityrestriction-
dc.relation.isPartOfJournal of Empirical Research on Human Research Ethics-
dc.rightsCC BY-NC-ND 2.0 KR-
dc.subject.MESHBiological Specimen Banks*-
dc.subject.MESHBiomedical Research*-
dc.subject.MESHCommunication-
dc.subject.MESHHumans-
dc.subject.MESHInformed Consent*-
dc.subject.MESHResearch Personnel-
dc.titleDynamic Consent: An Evaluation and Reporting Framework-
dc.typeArticle-
dc.contributor.collegeCollege of Medicine (의과대학)-
dc.contributor.departmentDept. of Medical Law and Bioethics (의료법윤리학과)-
dc.contributor.googleauthorMegan Prictor-
dc.contributor.googleauthorMegan A Lewis-
dc.contributor.googleauthorAinsley J Newson-
dc.contributor.googleauthorMatilda Haas-
dc.contributor.googleauthorSachiko Baba-
dc.contributor.googleauthorHannah Kim-
dc.contributor.googleauthorMinori Kokado-
dc.contributor.googleauthorJusaku Minari-
dc.contributor.googleauthorFruzsina Molnár-Gábor-
dc.contributor.googleauthorBeverley Yamamoto-
dc.contributor.googleauthorJane Kaye-
dc.contributor.googleauthorHarriet J A Teare-
dc.identifier.doi10.1177/1556264619887073-
dc.contributor.localIdA01096-
dc.identifier.pmid31729900-
dc.identifier.urlhttps://journals.sagepub.com/doi/10.1177/1556264619887073-
dc.subject.keyworddynamic consent-
dc.subject.keywordinformed consent-
dc.subject.keywordevaluation-
dc.subject.keywordreporting-
dc.subject.keywordtrials-
dc.subject.keyworddigital-
dc.subject.keywordgenomics-
dc.subject.keywordbiobanking-
dc.subject.keywordresearch participation-
dc.contributor.alternativeNameKim, Han Nah-
dc.contributor.affiliatedAuthor김한나-
dc.citation.volume15-
dc.citation.number3-
dc.citation.startPage175-
dc.citation.endPage186-
dc.identifier.bibliographicCitationJournal of Empirical Research on Human Research Ethics, Vol.15(3) : 175-186, 2020-07-
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Medical Humanities and Social Sciences (인문사회의학교실) > 1. Journal Papers

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