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소아기 만성 난치성 질환 환아 보호자의 치료과정에서의 어려움과 정신건강 서비스에 대한 인식

Other Titles
 Difficulties in the Treatment and Perceptions of Mental Health Service Interventions by Caregivers for Those with Pediatric Chronic Intractable Diseases 
 류혜진  ;  엄소용  ;  이영목  ;  신의진 
 Korean Journal of Infant Mental Health (영유아아동정신건강연구), Vol.13(1) : 1-18, 2020-06 
Journal Title
 Korean Journal of Infant Mental Health (영유아아동정신건강연구) 
Issue Date
pediatric chronic disease ; chronic intractable disease ; difficulties in caregivers of chronic intractable disease patients ; caregivers’ mental health service
The aim of this study is to identify the actual access status and level of demand for caregivers’ mental health services, including services for children, by exploring the difficulties experienced by caregivers of children with chronic intractable diseases in medical care. The findings show that the psychological and mental difficulties of the family of such patients due to patient care are consistently high, with limited access to accurate information and treatments appropriate for incurable diseases also reported. 74% of the respondents in this study reported they had no experience with mental health services available to them, indicating most frequently that they did not have time or the economic ability to undertake psychological counseling. With regard to children, therapeutic interventions have sought mainly to improve the performance outcomes of basic daily functions, though the service experience associated with mental health for children was insufficient. Nevertheless, 79% of respondents responded positively when asked about the need for intervention in mental health services for their children, thus confirming these needs. The results of this study demonstrate that the provision of professional mental health support services at the national level for psychological and emotional problems is essential for the efficient management of chronic incurable disease, while also providing basic data to help establish a more realistic and practical psychological support system.
Files in This Item:
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Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Psychiatry (정신과학교실) > 1. Journal Papers
1. College of Medicine (의과대학) > Dept. of Pediatrics (소아과학교실) > 1. Journal Papers
Yonsei Authors
Shin, Yee Jin(신의진) ORCID logo https://orcid.org/0000-0001-8573-4342
Lee, Young Mock(이영목) ORCID logo https://orcid.org/0000-0002-5838-249X
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