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Factors contributing to the development of perceived stigma in people with newly diagnosed epilepsy: A one-year longitudinal study

 Gha-hyun Lee  ;  Sang-Ahm Lee  ;  Soon-Kee No  ;  Sang-Moo Lee  ;  Ji-Yeon Ryu  ;  Kwang-Deog Jo  ;  Jee-Hyun Kwon  ;  Ok-Joon Kim  ;  Hyungkook Park  ;  Oh-Young Kwon  ;  Ji-Hyun Kim  ;  Won-Joo Kim 
 EPILEPSY & BEHAVIOR, Vol.54 : 1-6, 2016 
Journal Title
Issue Date
Adult ; Epilepsy/psychology* ; Female ; Humans ; Longitudinal Studies ; Male ; Middle Aged ; Personality* ; Personality Tests ; Republic of Korea ; Seizures/psychology* ; Social Stigma* ; Stereotyping* ; Young Adult
Anxiety ; Depression ; Epilepsy ; Introverted personality ; Newly diagnosed ; Stigma
PURPOSE: We evaluated the course of perceived stigma and the factors associated with perceived stigma over the first year in newly diagnosed people with epilepsy (PWE). METHODS: We recruited newly diagnosed PWE from 12 tertiary hospitals in Korea. The perceived stigma of epilepsy was assessed using the Stigma Scale at baseline and one year later. At the time of diagnosis, demographic, clinical seizure-related, and psychological data were collected. The predictive factors for perceived stigma over one year were analyzed using logistic regression analyses. RESULTS: Two hundred eighteen newly diagnosed PWE were included at baseline, and 153 completed the study. The percentage of participants who felt stigmatized decreased from 30.7% at the time of diagnosis to 17.6% at the end of follow-up. Introverted personality and a high level of anxiety were independent factors contributing to stigma at the time of epilepsy diagnosis. At the one-year follow-up, introverted personality and lower economic status were predictive of the development of perceived stigma. CONCLUSION: Introverted personality was an important factor contributing to the development of perceived stigma at the time of diagnosis and at one year after diagnosis. In addition, a high level of anxiety and a low economic status were independently related to feelings of stigma at baseline and at one year after diagnosis, respectively. There may be a decrease in the perception of stigma over one year in newly diagnosed PWE.
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1. College of Medicine (의과대학) > Dept. of Neurology (신경과학교실) > 1. Journal Papers
Yonsei Authors
Kim, Won Joo(김원주) ORCID logo https://orcid.org/0000-0002-5850-010X
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