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Health-Related Internet Use by Informal Caregivers of Children and Adolescents: An Integrative Literature Review

Authors
 Eunhee Park  ;  Heejung Kim  ;  Andreanna Steinhoff 
Citation
 JOURNAL OF MEDICAL INTERNET RESEARCH, Vol.18(3) : 57, 2016 
Journal Title
 JOURNAL OF MEDICAL INTERNET RESEARCH 
ISSN
 1439-4456 
Issue Date
2016
MeSH
Adolescent ; Adult ; Caregivers* ; Child ; Consumer Health Information/utilization* ; Family ; Health Personnel ; Humans ; Information Seeking Behavior* ; Internet/utilization* ; Parents* ; Social Support*
Keywords
Internet ; adolescent ; caregivers ; children ; consumer health information ; eHealth
Abstract
BACKGROUND: Internet-based health resources can support informal caregivers who are caring for children or adolescents with health care needs. However, few studies discriminate informal caregivers' needs from those of their care recipients or those of people caring for adults. OBJECTIVE: This study reviews the literature of health-related Internet use among informal caregivers of children and adolescents. METHODS: A total of 17 studies were selected from literature searches conducted in 6 electronic databases: PubMed, Cochrane, CINAHL, PsycINFO, ERIC, and EMBASE. All databases searches were limited to articles published in the years 2004 to 2014 in peer-reviewed publications. Search terms consisted of "health-related Internet use," "eHealth," "Internet use for health-related purpose(s)," "Web-based resource(s)," and "online resources," combined with informal caregiver (or "parents") of "child," "adolescent," "student," "youth," and "teen." The age range of the children receiving care was limited to younger than 22 years. Their informal caregivers were defined as persons (parents) who provided unpaid care or assistance to a child or an adolescent with health problems. RESULTS: Among 17 empirical studies, the majority of informal caregivers of children with medical issues were the parents. Quantitative studies (14/17, 77%) reported prevalence and predictors of health-related Internet use, while mixed-methods and qualitative studies (3/17, 24%) investigated informal caregiver perceptions of helpful health-related Internet use and barriers of use. The prevalence of health-related Internet use varied (11%-90%) dependent upon how health-related Internet use was operationalized and measured. Disease-specific information was used for decision making about treatment, while social support via virtual communities and email were used for informal caregiver emotional needs. A digital divide of Internet access was identified in lower educated minorities. Most studies had methodological challenges resulting from convenience sampling, cross-sectional surveys, lack of theoretical frameworks, or no clear definitions of health-related Internet use. CONCLUSIONS: This study provides an important understanding of how family members use Internet-based information and support systems during child caregiving. Healthcare providers and policy makers should integrate family needs into their current practices and policies. Further rigorous research is required to design efficient and effective nursing interventions.
Files in This Item:
T201600771.pdf Download
DOI
10.2196/jmir.4124
Appears in Collections:
3. College of Nursing (간호대학) > Dept. of Nursing (간호학과) > 1. Journal Papers
Yonsei Authors
Kim, Heejung(김희정) ORCID logo https://orcid.org/0000-0003-3719-0111
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/146509
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