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Care Needs of Adolescents and Young Adults with Cancer Undergoing Active Treatment in South Korea: A Mixed Methods Study

Authors
 Mina Park  ;  Seung Yeon Kwon  ;  Hyeseon Yun  ;  Chuhl Joo Lyu  ;  Jung Woo Han  ;  Seung Min Hahn  ;  Minkyu Jung  ;  Sun Young Rha  ;  Seung-Hoon Beom  ;  Choong-Kun Lee  ;  Hyeju Jang 
Citation
 JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, Vol.12(3) : 398-407, 2023-06 
Journal Title
JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY
ISSN
 2156-5333 
Issue Date
2023-06
MeSH
Adolescent ; Aged ; Child ; Communication* ; Cross-Sectional Studies ; Focus Groups ; Humans ; Neoplasms* / therapy ; Republic of Korea ; Young Adult
Keywords
AYAs ; cancer ; care needs ; mixed methods ; needs assessment
Abstract
Purpose: Adolescents and young adults (AYAs) with cancer have special care needs that are different from those of children and older adults with cancer. This study assessed the perspective and experience of AYAs with cancer in South Korea to identify their care needs. Methods: This study used a convergent mixed-methods design. From July 2020 to November 2021, AYAs with cancer (N = 77; 15-39 years of age) participated in a quantitative cross-sectional study, using a tool developed by our study team. In May 2021, a qualitative focus group was conducted with 10 AYAs with cancer. Integrated analyses were conducted concurrently by reporting the quantitative and qualitative findings together. Results: Quantitative findings revealed that the highest care need domains were communication and information, whereas the highest care priority item was the management of pain and symptoms occurring during the treatment. Qualitative findings revealed 12 themes across 5 domains. Comparing and merging of the quantitative and qualitative data resulted in eight confirmed themes and four expanded findings, including knowing people who overcame similar illnesses, fear of death, dedicated space, and a program for AYAs with cancer. Conclusion: When developing and implementing programs and health care services, especially in countries with no established program or cancer specialty unit for AYAs with cancer, it is important to consider the special care needs and priorities of AYAs with cancer. This mixed methods study provided empirical evidence to help understand and prioritize the needs of AYAs with cancer undergoing active treatment in South Korea.
Full Text
https://www.liebertpub.com/doi/10.1089/jayao.2022.0030
DOI
10.1089/jayao.2022.0030
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Internal Medicine (내과학교실) > 1. Journal Papers
1. College of Medicine (의과대학) > Dept. of Pediatrics (소아과학교실) > 1. Journal Papers
Yonsei Authors
Rha, Sun Young(라선영) ORCID logo https://orcid.org/0000-0002-2512-4531
Beom, Seung Hoon(범승훈) ORCID logo https://orcid.org/0000-0001-7036-3753
Lyu, Chuhl Joo(유철주) ORCID logo https://orcid.org/0000-0001-7124-7818
Lee, Choong-kun(이충근) ORCID logo https://orcid.org/0000-0001-5151-5096
Jung, Min Kyu(정민규) ORCID logo https://orcid.org/0000-0001-8281-3387
Hahn, Seung Min(한승민) ORCID logo https://orcid.org/0000-0001-9832-6380
Han, Jung Woo(한정우) ORCID logo https://orcid.org/0000-0001-8936-1205
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/197421
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