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Medical staff tend to underestimate the quality of life in children and adolescents with inflammatory bowel disease

Authors
 Seung Kim  ;  Sowon Park  ;  Yunkoo Kang  ;  Namkyung Kwon  ;  Hong Koh 
Citation
 Acta Paediatrica, Vol.108(1) : 138-142, 2019 
Journal Title
 Acta Paediatrica 
ISSN
 0803-5253 
Issue Date
2019
Keywords
Crohn disease ; Patient-reported outcome ; Quality of life ; Ulcerative colitis
Abstract
AIM: We evaluated how well medical staff or parents understood patients with inflammatory bowel disease (IBD) by comparing their evaluation of the patients' quality of life (QoL) with the patients' self-reported QoL. METHODS: This study was carried out at Severance Children's Hospital in Seoul, Korea, in 2017. The children with IBD were recruited from August 2017 to December 2017, and they had a mean age of 16.4 (range 9.3-18.9) years. We asked the 64 children (38 boys), 58 mothers, 16 fathers, three physicians and one IBD nurse to answer the IMPACT-III questionnaire, which measures QoL, and compared the scores. RESULTS: The intraclass correlation coefficient of the total IMPACT-III score was highest for the patient and their father (0.824) and then for the patient and their mother (0.689), physician (0.625) and IBD nurse (0.499). Parents and medical staff thought the patients' QoL was lower than the patients themselves. The differences in the IMPACT-III scores of the patients were -10.09 ± 17.86 for physicians, -9.87 ± 15.80 for mothers, -5.72 ± 17.04 for nurses and -3.81 ± 11.82 for fathers. CONCLUSION: Parents and medical staff showed some correlation with the QoL documented by adolescent IBD patients, but tended to underestimate the levels.
Full Text
https://onlinelibrary.wiley.com/doi/full/10.1111/apa.14498
DOI
10.1111/apa.14498
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Pediatrics (소아청소년과학교실) > 1. Journal Papers
Yonsei Authors
강윤구(Kang, Yunkoo) ORCID logo https://orcid.org/0000-0003-1712-2138
고홍(Koh, Hong) ORCID logo https://orcid.org/0000-0002-3660-7483
김승(Kim, Seung) ORCID logo https://orcid.org/0000-0003-4373-9828
박소원(Park, So Won) ORCID logo https://orcid.org/0000-0002-2498-8004
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URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/167323
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