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Impact of inflammatory bowel disease on daily life: an online survey by the Korean Association for the Study of Intestinal Diseases

Authors
 Young Sun Kim  ;  Sung-Ae Jung  ;  Kang-Moon Lee  ;  Soo Jung Park  ;  Tae Oh Kim  ;  Chang Hwan Choi  ;  Hyun Gun Kim  ;  Won Moon  ;  Chang Mo Moon  ;  Hye Kyoung Song  ;  Soo-Young Na  ;  Suk-Kyun Yang  ;  Korean Association for the Study of Intestinal Diseases (KASID) 
Citation
 INTESTINAL RESEARCH, Vol.15(3) : 338-344, 2017 
Journal Title
 INTESTINAL RESEARCH 
ISSN
 1598-9100 
Issue Date
2017
Keywords
Colitis, ulcerative ; Crohn disease ; Inflammatory bowel disease ; Quality of life ; Surveys and questionnaires
Abstract
BACKGROUND/AIMS: Inflammatory bowel disease (IBD) is a chronic disabling gastrointestinal disorder that diminishes the quality of life of the affected individuals. Limited data are available regarding the impact of IBD on the daily life of Koreans. METHODS: Self-administered, computer-aided, internet-based questionnaires were distributed to members of a Korean patient organization for IBD from March to April 2013, by the Korean Association for the Study of Intestinal Diseases. RESULTS: A total of 599 patients with IBD (387 with Crohn's disease [CD] and 212 with ulcerative colitis [UC]) were enrolled. The majority of patients (81%) expressed feelings of fatigue, weakness, and being worn out in their daily lives during times of flare; this percentage was reduced to 61% during remission. Respondents were absent from work or school for an average period of 18 days because of illness, within the first 6 months; the majority of respondents (64%) felt stressed about their absence. Forty-six percent of the respondents reported having received unfair comments at work, or having suffered discrimination. Forty-seven percent of the respondents felt that IBD had negatively affected their income and earnings. Compared with patients with UC, those with CD reported a more frequent negative impact of IBD on work, or more economic burden. More than half of the respondents (61%) reported that IBD had prevented them from making or keeping friends. CONCLUSIONS: IBD significantly impacts daily life, including work, education, and social relationships. Treatment that addresses the full spectrum of life of a patient would be more effective.
Files in This Item:
T201704949.pdf Download
DOI
10.5217/ir.2017.15.3.338
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Internal Medicine (내과학교실) > 1. Journal Papers
Yonsei Authors
Park, Soo Jung(박수정)
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/161486
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