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Postoperative quality of life in patients with progressive neuromuscular scoliosis and their parents

 Kyung Soo Suk  ;  Jin Hee Baek  ;  Jin-Oh Park  ;  Hak-Sun Kim  ;  Hwan-Mo Lee  ;  Ji-Won Kwon  ;  Seong-Hwan Moon  ;  Byung Ho Lee 
 SPINE JOURNAL, Vol.15(3) : 446-453, 2015 
Journal Title
Issue Date
Adolescent ; Disease Progression ; Female ; Humans ; Male ; Muscular Atrophy, Spinal/diagnostic imaging ; Muscular Atrophy, Spinal/psychology ; Muscular Atrophy, Spinal/surgery* ; Muscular Dystrophies/diagnostic imaging ; Muscular Dystrophies/psychology ; Muscular Dystrophies/surgery* ; Parents/psychology ; Postoperative Period ; Postural Balance ; Quality of Life* ; Radiography ; Retrospective Studies ; Scoliosis/diagnostic imaging ; Scoliosis/physiopathology ; Scoliosis/psychology ; Scoliosis/surgery* ; Spinal Fusion/psychology ; Surveys and Questionnaires ; Treatment Outcome ; Young Adult
Correctional surgery ; Neuromuscular scoliosis ; Parents ; Population norm ; Quality of life ; SF-36
BACKGROUND CONTEXT: The functional level of children with progressive neuromuscular disease is a major factor that affects the quality of life (QOL) of parents. However, only a few publications have reported changes in the QOL of parents after correctional spinal surgery.
PURPOSE: The purpose was to compare changes in QOL for both patients and parents after spinal correctional surgery for better sitting balance and to analyze correlation among radiographic parameters, functional outcome, and QOL questionnaires. Finally, the QOL of patients and parents was compared with the population norm.
STUDY DESIGN: This study is a retrospective analysis of prospectively gathered data.
PATIENT SAMPLE: From 2008 to 2011, 58 patients who underwent correctional surgery for progressive neuromuscular scoliosis and their parents were enrolled.
OUTCOME MEASURES: A Muscular Dystrophy Spine Questionnaire (MDSQ) and short-form questionnaire 36 (SF-36) were used.
METHODS: The gathered functional outcome and QOL data using MDSQ and SF-36 for both enrolled patients and parents were compared preoperatively, postoperatively at 3 months, and at 1-year follow-up.
RESULTS: Mean age was 15.0±4.1 years. Forty male and 18 female patients were enrolled. Mean follow-up was 38.4±13.7 months. Cobb angle was 61.5°±23.5° preoperatively, 39.0°±20.1° immediately postoperative, and 40.0°±20.2° at the final follow-up. Cobb angle, pelvic obliquity, and lumbar lordosis were significantly improved after surgery (p<.001). Among sitting-related questions, answers to questions 15 (sitting comfortably), 16 (change weight in wheelchair), 22 (sit all day), 24 (sit at table for meal), 26 (keep balance while sitting in wheelchair), and 27 (look good while sitting in wheelchair) were significantly improved after correctional surgery (p<.001). Regarding the SF-36 scales for patients, bodily pain and social functioning significantly improved postoperatively (p<.001).
CONCLUSIONS: Muscular Dystrophy Spine Questionnaire results indicated that patients had significantly improved sitting balance-related outcomes, whereas the SF-36 indicated improvements only in bodily pain and social functioning scales. For parents, no SF-36 scales improved significantly postoperatively. Accordingly, improved sitting balance and QOL for neuromuscular scoliosis patients after surgery do not necessarily increase parent QOL.
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1. College of Medicine (의과대학) > Dept. of Orthopedic Surgery (정형외과학교실) > 1. Journal Papers
Yonsei Authors
Kwon, Ji-Won(권지원) ORCID logo https://orcid.org/0000-0003-4880-5310
Kim, Hak Sun(김학선) ORCID logo https://orcid.org/0000-0002-8330-4688
Moon, Seong Hwan(문성환)
Park, Jin Oh(박진오)
Suk, Kyung Soo(석경수) ORCID logo https://orcid.org/0000-0003-0633-2658
Lee, Hwan Mo(이환모) ORCID logo https://orcid.org/0000-0002-5405-3832
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