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인공호흡기를 사용하는 신경근육계 환자들의 삶의 질 평가

Other Titles
 Quality of Life in Patients with Neuromuscular Disease Using Mechanical Ventilatory Support 
 박중현  ;  김성웅  ;  하영란  ;  김은주 
 Journal of the Korean Academy of Rehabilitation Medicine (대한재활의학회지), Vol.28(2) : 157-162, 2004 
Journal Title
Journal of the Korean Academy of Rehabilitation Medicine(대한재활의학회지)
Issue Date
Quality of life ; Mechanical ventilation ; Neuromuscular disease ; Pulmonary rehabilitation
Objective: To estimate the quality of lives in neuromuscular disease patients using mechanical ventilators by comparing their 'Index of Well-being' reported their own and caregivers.Method: The Semantic Differential Scale of General Affect and Life Domain Satisfaction Measures were instruments to measure perceived well-being. They were used to survey 33 ventilator-assisted patients and their caregivers. A third instrument was devised to study the satisfaction of rehabilitative management including mechanical ventilation. Results: The caregivers significantly underestimated their patients' scores in the general affect instruments and lifesatisfaction (p<0.05). Twenty-six of 33 responding patients (78.8%) expressed satisfaction with present rehabilitative management.Conclusion: The most disabled ventilator-assisted patients with neuromuscular disease rated their quality of life as satisfying. The dependence on ventilation was not a predictor of a low quality of life. But the rating of the patient's quality of life from significant others was underestimated. This was important because patients' decision making concerning ventilation care was influenced by significant others.
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Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Rehabilitation Medicine (재활의학교실) > 1. Journal Papers
Yonsei Authors
Kang, Seong Woong(강성웅) ORCID logo https://orcid.org/0000-0002-7279-3893
Kim, Eun Joo(김은주)
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