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Patient-reported assessment of quality care at end of life: Development and validation of Quality Care Questionnaire–End of Life (QCQ–EOL)

Authors
 Young Ho Yun  ;  Soo-Hyun Kim  ;  Kyoung-Min Lee  ;  Sang Min Park  ;  Chang Geol Lee  ;  Youn Seon Choi  ;  Won Sup Lee  ;  Si-Young Kim  ;  Dae Seog Heo 
Citation
 EUROPEAN JOURNAL OF CANCER, Vol.42(14) : 2310-2317, 2006 
Journal Title
 EUROPEAN JOURNAL OF CANCER 
ISSN
 0959-8049 
Issue Date
2006
MeSH
Adult ; Aged ; Female ; Humans ; Male ; Middle Aged ; Neoplasms/psychology ; Neoplasms/therapy* ; Patient Satisfaction* ; Pilot Projects ; Quality of Life* ; Surveys and Questionnaires/standards* ; Terminal Care/standards* ; Terminally Ill*
Keywords
Quality of care ; End of life ; QCQ-EOL ; Validation
Abstract
Our goal was to validate an instrument with which terminally ill patients could evaluate the quality of care they receive at the end of life (EOL). Questionnaire development followed a four-phase process: item generation and reduction, construction, pilot testing, and field-testing. Using relevance and priority criteria and pilot testing, we developed a 16-item questionnaire. Factor analyses of data from 235 patients resulted in the Quality Care Questionnaire–End of Life (QCQ–EOL) covering dignity-conserving care, care by health care professionals, individualised care, and family relationships. All subscales and total scores showed high internal consistency (Cronbach alpha range, 0.73–0.89). The ability of total score and selective subscale scores clearly differentiated patients on the basis of clinical situation, sense of dignity, and general rating of care quality. Correlations of scores between patients and caregivers were substantial. The QCQ–EOL can be adopted to assess the quality of care received by terminally ill patients.
Full Text
http://www.sciencedirect.com/science/article/pii/S0959804906005119
DOI
10.1016/j.ejca.2006.04.010
Appears in Collections:
1. College of Medicine (의과대학) > Dept. of Radiation Oncology (방사선종양학교실) > 1. Journal Papers
Yonsei Authors
Lee, Chang Geol(이창걸) ORCID logo https://orcid.org/0000-0002-8702-881X
URI
https://ir.ymlib.yonsei.ac.kr/handle/22282913/109557
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