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ELSI practices in genomic research in East Asia: implications for research collaboration and public participation

 Go Yoshizawa  ;  Calvin Wai-Loon Ho  ;  Wei Zhu  ;  Chingli Hu  ;  Yoni Syukriani  ;  Ilhak Lee  ;  Hannah Kim  ;  Daniel Fu Chang Tsai  ;  Jusaku Minari  ;  Kazuto Kato 
 GENOME MEDICINE, Vol.6(5) : 39, 2014 
Journal Title
Issue Date
Common infrastructures and platforms are required for international collaborations in large-scale human genomic research and policy development, such as the Global Alliance for Genomics and Health and the 'ELSI 2.0' initiative. Such initiatives may require international harmonization of ethical and regulatory requirements. To enable this, however, a greater understanding of issues and practices that relate to the ethical, legal and social implications (ELSI) of genomic research will be needed for the different countries and global regions involved in such research. Here, we review the ELSI practices and regulations for genomic research in six East Asian countries (China, Indonesia, Japan, Singapore, South Korea and Taiwan), highlighting the main similarities and differences between these countries, and more generally, in relation to Western countries. While there are significant differences in ELSI practices among these East Asian countries, there is a consistent emphasis on advancing genomic science and technology. In addition, considerable emphasis is placed on informed consent for participation in research, whether through the contribution of tissue samples or personal information. However, a higher level of engagement with interested stakeholders and the public will be needed in some countries.
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1. College of Medicine (의과대학) > Dept. of Medical Humanities and Social Sciences (인문사회의학교실) > 1. Journal Papers
Yonsei Authors
Kim, Han Nah(김한나)
Lee, Il Hak(이일학) ORCID logo https://orcid.org/0000-0002-6531-8752
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