The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination

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Authors: Yann Joly ; Katherine Huerne ; Mykhailo Arych ; Yvonne Bombard ; Aisling De Paor ; Edward S Dove ; Palmira Granados Moreno ; Calvin W L Ho ; Chih-Hsing Ho ; Ine Van Hoyweghen ; Hannah Kim ; Audrey Lebret ; Timo Minssen ; Katharina Ó Cathaoir ; Anya E R Prince ; Athira P S Nair ; Margaret Otlowski ; Michael S Pepper ; Rob Sladek ; Lingqiao Song ; Torsten H Voigt ; Ma'n H Zawati ; Gratien Dalpé ; Genetic Discrimination Observatory (GDO)

Keywords: ethical, legal, and social implications (ELSI) ; genetic databases ; genetic discrimination ; insurance contract ; intersex ; moratorium

Abstract: Genetic discrimination (GD) is the differential or unfair profiling of an individual on the basis of genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD and recent developments in GD since late 2020. It shows how GD can take many forms in today's rapidly evolving society.

Appears in Collections:: 1. College of Medicine (의과대학) > Dept. of Medical Humanities and Social Sciences (인문사회의학교실) > 1. Journal Papers

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