The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination
Authors
Yann Joly ; Katherine Huerne ; Mykhailo Arych ; Yvonne Bombard ; Aisling De Paor ; Edward S Dove ; Palmira Granados Moreno ; Calvin W L Ho ; Chih-Hsing Ho ; Ine Van Hoyweghen ; Hannah Kim ; Audrey Lebret ; Timo Minssen ; Katharina Ó Cathaoir ; Anya E R Prince ; Athira P S Nair ; Margaret Otlowski ; Michael S Pepper ; Rob Sladek ; Lingqiao Song ; Torsten H Voigt ; Ma'n H Zawati ; Gratien Dalpé ; Genetic Discrimination Observatory (GDO)
ethical, legal, and social implications (ELSI) ; genetic databases ; genetic discrimination ; insurance contract ; intersex ; moratorium
Abstract
Genetic discrimination (GD) is the differential or unfair profiling of an individual on the basis of genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD and recent developments in GD since late 2020. It shows how GD can take many forms in today's rapidly evolving society.